The Founder’s Story
I’m Bobby Krause
Originally a college athlete turned sales executive and father of two boys, I thrived on embracing life to the fullest. However, everything changed when a “nervous tick” began plaguing my left arm. Numerous doctor visits, MRI scans, and a crucial appointment with a neurologist in 2016 revealed a life-altering diagnosis: young onset Parkinson’s Disease at age 42.
The Founder’s Story
I’m Bobby Krause
Originally a college athlete turned sales executive and father of two boys, I thrived on embracing life to the fullest. However, everything changed when a “nervous tick” began plaguing my left arm. Numerous doctor visits, MRI scans, and a crucial appointment with a neurologist in 2016 revealed a life-altering diagnosis: young onset Parkinson’s Disease at age 42.
The Diagnosis
My Journey
Following the diagnosis, the harmless tick escalated into a relentless, debilitating tremor that affected my entire left side. These tremors caused constant pain, embarrassment, and a profound decline in my quality of life. Everyday tasks became daunting, from conducting business meetings to coaching my son’s basketball games.
I questioned how I could continue like this.
In 2020, a ray of hope emerged with news of clinical trials for a groundbreaking tremor treatment known as Focused Ultrasound. Thanks to our families generous employer’s medical benefits and the outstanding medical team at the University of Penn, I was scheduled for this life-changing therapy in June 2022.
Surrendered to Stillness
My Turning Point
June 9, 2022, is etched in my memory. As I traveled to the University of Penn for my Focused Ultrasound therapy, hope mingled with anxiety as my tremors intensified and my muscles tightened under the stress. Little did I know the profound impact the next two hours in the MRI tube would have on my life.
Being fully conscious on the MRI table felt surreal. I communicated with the medical staff in real time during the five sonication procedures that day. It was during the third sonication that something incredible happened: after nearly a decade of battling tremors, my body finally surrendered to stillness. The tremors ceased, my muscles relaxed, and the tension melted away. I could finally Be Still!
The Diagnosis
My Discovery
I have been privileged to share my journey with Parkinson’s Disease and my transformative experience with Focused Ultrasound at esteemed venues like Capitol Hill and Princeton University, as well as within communities such as Rock Steady Boxing. These interactions have shown me firsthand the hope my story inspires.
Yet, alongside this hope, I’ve encountered the stark reality of limited awareness, accessibility issues, and financial barriers that many face in accessing this treatment. It is these encounters with hopeful yet struggling individuals that sparked the creation of the Be Still Foundation.
We are here to help cover the costs, raise awareness, and provide education on the benefits of Focused Ultrasound therapy for those in need of tremor relief.
Donate Today
Be Part of Something Amazing
50% of Essential Tremor patients do not get satisfactory relief from medications or have intolerable side effects. 20% of Focused Ultrasound procedures performed are UNDER Medicare age. The average cash pay cost for Focused Ultrasound is $30,000 per side.
Be part of our mission today and help us bring relief to those who cannot afford care.